Aiden’s Update – August 25, 2016


“You are the reason why we smile every morning, the star that gives us hope during gloomy days. Your soft smile gives the strength that we need for our everyday labor and the determination to be the best daddy and mommy that we can be. “


Progress is progress, right?!  Aiden may not have picked up the full (7) ounces we would have liked him to since the last appointment, but he did gain and he is indeed being consistent.  As of yesterday he was at 14 lbs. 9 oz., so you know what…I’ll take it!!  I firmly believe that over time he will continue to progress in the direction, he has shown us already that he can handle larger bottles, so we’ve gone from 4oz to 8oz bottles.  From the large bottle, Aiden can consume 6oz in one sitting, that’s definitely progress from exclusively receiving feeds by a NG tube just over a month ago.


Aiden’s pediatrician prescribed Little Remedies Stuffy Nose Kit to help with the congestion issue, this product is a saline drop/spray that breaks up the mucus and flushes it.  It also has no alcohol and is not harsh on his little nose.  The congestion is more bothersome than anything as this point, but we need to remedy the issue immediately so it does not become more serious and spread to his lungs.  I picked up Little Remedies Stuffy Nose Kit from Walmart and gave him the first few drops directly in his nose last night, this stuff works great!  We had an episode this morning, Aiden started to take his bottle, he coughed and immediately spit up the formula mixed with this thick mucus.  That has happened a few times throughout the day and I can already see and hear a major improvement with his breathing and the way he sounds.


The last picture is a result of Aiden receiving immunizations.  As you can see, he was totally in his feelings and not happy about it.  If you look closely you can see a single tear running down the side of his face,  he even  turned his head to the side so he wouldn’t have to look at us…talk about a strong, firm personality 🙂 .




I wanted to take a moment and say thank you to each of you that continue to check on Aiden, follow his updates and keep him in your prayers.  I know in the beginning it was quite one-sided where I would share his updates without many replies to your wonderful comments and prayers (I am sure you understood the circumstances), but  since sharing Aiden’s journey  I absolutely have read every single comment, private message, email, text, etc.  that has been sent to us.  We are forever thankful and feel so blessed to be surrounded by such a giving community, near and far….you are forever in our hearts.

#AidenStrong #CDHawareness #CDHwarrior

To READ Aiden’s Story – Love, Hope and Faith for Aiden

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