Aiden’s Update – Feb. 24 – Mar. 22, 2016

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February 23, 2016

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I am almost ashamed to admit it, but I would be a liar if I told you that in moments of uncertainty, doubt has not crossed my mind. After all, I am human…However, in my heart and acknowledging my God who has always loved me and stayed by my side erases that doubt and reassures me with strength and peace. I know this is not all in vain and not even for my own personal gain, but instead to serve a greater purpose. It is not always the easiest thing to do, but I am trusting.

Aiden Dyson CDH Ribbon

 

February 25, 2016

Aiden Mathis.Feb25

Aiden’s Update–Again, we are sending a special “Thank You” to each and everyone one of you for your continued prayers, encouragement and messages. On February 11th, I returned for a follow up with our neonatal doctor and pediatric cardiologist at the High Risk Pregnancy Center. Currently, Aiden is continuing to grow and thrive and he’s actually quite big. In the womb is the best & safest place for him right now, as he does not have to work to breath on his own. Looking at the positive, his heart is strong and working properly as it should and the cardiologist has shifted the focus from the pulmonary sequestration to the Congenital Diaphragmatic Hernia (CDH). Although they are able to see some lung tissue, which is a great factor in determining the severity of CDH babies, they cannot fully see the extent that it is growing and will not know until he is born. In addition to the initial diagnosis of his stomach being herniated in the chest cavity (one of the symptoms of CDH), it appears that a portion of his bowel/intestine may be herniated as well…this of course is not the news we wanted. Right now these are the facts 1) Aiden will definitely have surgery once he is born and is stabilized (this could be same day, few days later and so on) and 2) Aiden will have some type of stay in the hospital. Fact #2…well, let’s just say this is something that did not fully register, at least not until about last week, which was probably one of the toughest weeks I have experienced personally. I know and understand the diagnosis, I’ve researched it and I am extremely forward with our doctors, but the idea of not taking Aiden home right away was still foreign and perhaps something I was just not accepting. It took some time to pull myself back together, every attempt at trying to share an update about Aiden failed and as I shared before, I allowed some doubt to enter my heart. However, with prayer and just getting fed up with the way I felt and of course the support of my wonderful husband and children, I was able to overcome that moment.

What’s so amazing, is shortly after I made a conscience decision to trust God, I scanned my email before heading to bed (which I normally do) and it read: Today’s Scripture-”Trust in the Lord with all your heart and lean not on your own understanding.”
(Proverbs 3:5, NIV)…which just so happens to be a portion of my FAVORITE scripture.

The full devotion was titled “Lean On Him.” Are you facing a situation that seems like it has no logical solution? Sometimes we have to turn our minds off, stop trying to figure it all out, stop over-analyzing, and stop researching everything. When you don’t see the answer in the natural realm, it’s time to stop leaning on your own understanding and choose to trust God. Sometimes our minds can be a distraction to our “inner sensor” or that place inside where God speaks to our hearts. Our minds can allow fear and dread to distract us from what God is trying to tell us. That’s why the scripture says that we can’t lean on our own understanding. We have to take time to shut off the distractions, shut off fear, and listen to what’s going on inside of us. That’s where faith rises up. That’s where all of the sudden, you’ll feel a spark of hope even when things look impossible. Today, no matter what it looks like in the natural, choose to lean on Him. Trust that He has favor in store for your future. Trust that something good is about to happen. Trust Him because He alone can take you to new levels in every area of your life! (Prayer)“Father, today I choose to lean on You. I choose to trust that You are working on my behalf. I won’t put my confidence in what I see, but I will trust in Your Word which remains true forever in Jesus’ name. Amen.”

Since that time, something did spark, I felt renewed and in a much better place as we move forward and prepare for Aiden.

Currently, I am visiting the High Risk Center twice a week to monitor Aiden, due to excessive amniotic fluid in the womb (Polyhydramnios-which this tends to occur when there is an abnormality). On Friday, February 19th I was directed to labor and delivery for monitoring due to symptoms I was experiencing, which included excessive swelling and acid reflux…all due to the polyhydramnios and the extra pressure. This led to my doctor putting me on bed-rest, however, I am happy to share that during my appointment today we were informed that the fluid is within a normal range.

Our family is in encouraged, continuing to pray and lifting one another up. We are continuing to add your sweet comments and prayers to Aiden’s book, which is still growing and such a great source of encouragement for us. Just as before, I am asking that each night you find it in your heart to say a special prayer for our family…that is all. With Love, Hope and Faith we will get through this.

Love & Blessings, Kia~
#CDHawareness

 

March 15, 2016

Aiden Mathis Faith

Aiden’s Update–In a little over two weeks (16 days to be exact) Aiden will be here, I am scheduled to be induced on Thursday, March 31st. Although I was induced with Q, Auri, Allan & Ash, because I carried all the way to term with each and went over, this delivery is quite different and I am being induced at a specific time to ensure that the whole team needed for Aiden’s delivery will be available and ready to go (which includes our OB/GYN, Neonatologist, Pediatric Cardiologist and the Pediatric Surgeon). Due to the nature of Aiden’s condition, we have to deliver at a hospital which is equipped to accommodate his needs, has a Level 3 NICU (Neonatal Intensive Care Unit), PICU (Pediatric Intensive Care Unit), and ECMO capabilities if needed (Extra Corporeal Membrane Oxygenation~a life-saving technique that mimics the natural function of the heart and lungs, allowing an infant or child to rest while natural healing of the affected organs takes place). Our doctors have selected Sunrise Children’s Hospital here in Vegas, which meets all those needs and is also the home of the Children’s Heart Center and our Pediatric Cardiologist.

In regards to Aiden’s progress in the womb, he is continuing to thrive and to our surprise is quite big. I am currently seeing our OB/GYN and Neonatologist weekly in addition to monitoring twice a week at the High Risk Center. At our last appointment with the Neonatologist last week, Aiden measured at 7.5lbs…yes you read that right…I couldn’t believe it. Two of my boys were somewhere around 6lbs, Ash was 8lbs 12 oz and Auri was our BIG baby at 9lbs (+) (now she’s the smallest little thing). Although my first thought was “Oh My Goodness, please don’t get much larger over these next three weeks” (simply because I am delivering naturally), but I instantly thought of the positive. Perhaps, this is in fact great for our little guy, we already know he’s a fighter, so just maybe that extra size will make him even stronger….so I say GROW BABY GROW 🙂.

Since my last update, the polyhydramnious is still a factor and I am continuing to experience the excessive swelling and acid reflux as symptoms. However, the acid reflux is much more manageable with the help of antacids. The extra amniotic fluid is of more concern and causes an extreme amount of discomfort for me, I have been told that the fluid is equivalent to carrying another baby in addition to Aiden. Some days are better than others, but I know we are getting so close so I refrain from complaining, but that doesn’t mean I don’t periodically have my private moments filled with some tears. However, they are short-lived, because I have a wonderful husband that tries his hardest to comfort me with sweet gestures such as rubbing my ankles and back (sometimes the kiddos join in too).

As time draws near, I realized that I have waited to prepare the nursery and purchase baby items for my own personal reasons and not necessarily for the obvious reasons you may think. This also extends to having a baby shower, I have some wonderful friends and family that have inquired about a shower or hosting one, but my heart was simply not in it. With that said, me not wanting to have a shower was not because I have doubt or fear that Aiden will not make it, it’s just something that my heart was not ready to have. I expressed this to Trelas and he explained how even though I may feel this way, I should not prevent those around me that love and care for me from being able to bless me or Aiden as they desire. I agree and although I am not having a baby shower, I did create a baby registry at Babies R Us and Target. So to my friends and family that have asked, this is a link to (The Bump) which shows both registries in one place. http://registry.thebump.com/nikia-dyson-trelas-dyson-iii-march-2016/14416882
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As with many trials that we go through, at some point we have to come to terms that our trials our to elevate us, bring us to a new point in our lives or even to mature us, which brings me to James 1:2-4.

“2.Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, 3.because you know that the testing of your faith produces perseverance. 4.Let perseverance finish its work so that you may be mature and complete, not lacking anything.”

When things are not going as planned and we can’t quite understand why something is happening, the easiest thing to do is to allow doubt to enter your heart and mind. You may find yourself questioning God or even getting upset. I think this is part of human nature when you allow fear to creep in, but when you go back to the word and His promises, you have to accept that there are NO coincidences. This very moment, this very trial is part of a larger unit designed for a purpose. When you fully accept that your trial is not an accident and you put your total trust in God, that’s when he is able to mature and mold us. Although this may be one of the hardest things you have ever had to do, it starts with trust and faith. My mind is made up to trust and walk in faith as we prepare for Aiden and with that I feel more at peace.
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As always, thank you for your continued outpouring of love, support, prayers and encouragement. We are continuing to add your sweet comments and prayers to Aiden’s book, which continues to grow and grow almost daily. Just as I have asked before, if you find it in your heart, please say a special prayer for our family…that is all. **With Love, Hope and Faith we will get through this.**

Love & Blessings, Kia~
#CDHawareness #AidenStrong

 

March 16, 2016

CDH Explanation

For those of you wondering exactly what is CDH (Congenital Diaphragmatic Hernia), this illustration provides a brief but quite detailed explanation. Although every patient diagnosed with CDH is different, these are some or all of the symptoms that may be experienced (listed on image). (A Few Facts) CDH occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year), the cause of it is not yet known, it occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage. For these reasons stated, it is important that our family help raise awareness and contribute to being a resource for other families that may encounter this journey.

March 20, 2016

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March 20, 2016

Aiden's Blessing

My dear friend Kasina Boone, brought a wonderful group of ladies together today for a blessing (instead of a tradition baby shower). The kindness shown by others is always a source of encouragement and it is truly such a blessing to be surrounded by genuine love. Not only did I take home a gift of peace, but each lady contributed to a scrapbook for Aiden, wrote personal letters to me with their thoughts & prayers and we received a beautiful prayer wishing well for Aiden. I am forever thankful for the love and kindness shown today.

 

March 22, 2016

Aiden Prayer Request

Prayer Request to Friends & Family….As March 31st quickly approaches and we continue to prepare for Aiden’s birth, I have a special request if you will join in with me. Every day at 3:31 (morning or night), I ask that you say a quick prayer for Aiden; the time symbolizes his birth 3/31 of 2016. We are continuing to trust and believe for healing and covering for our precious Aiden.

Matthen 18:20
For where two or three gather in my name, there am I with them.
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**Earlier today I came across this wonderful idea from a beautiful young mother that commented under one of my IG images (I hope she doesn’t mind me using it)**

#CDHawareness #AidenStrong

To READ Aiden’s Story – Love, Hope and Faith for Aiden

On FaceBook: https://www.facebook.com/LoveHopeFaith4Aiden/

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